There is no pain associated with Ehlers-Danlos Syndrome (EDS).

FACT: There is pain associated with Ehlers-Danlos Syndrome. Individuals with EDS experience both chronic and severe acute pain. Pain management is often very challenging for affected people. Pain is a criterion for diagnosing EDS.




In order to have Ehlers-Danlos Syndrome, you must have the “Classic sign” of hyper-elastic skin.

FACT: Hyper-elastic skin is an indicator for Classic type of Ehlers-Danlos Syndrome, but is not typical for all types. Hypermobility of the joints is a common finding for all forms of EDS!




You do not have any bruises, so you can’t have Ehlers-Danlos Syndrome!

FACT: Not everyone who has Ehlers-Danlos Syndrome will bruise easily. Those who do experience significant bruising tend to have fragile blood vessels and translucent skin.




You have to be tall and thin in order to be diagnosed with Ehlers-Danlos Syndrome.

FACT: Marfanoid habitus is only a minor criterion for diagnosing a person with EDS. Those who have EDS can vary in height, weight and ethnic backgrounds.




Ehlers-Danlos Syndrome is only a muscle and joint disorder!

FACT: EDS is characterized by a genetic defect in connective tissues.  Connective tissues make up 21% of the body. Since connective tissues support many organs, specific body parts, and tissues; it can be a multisystem disorder depending on the type of EDS. From head to toe, EDS affects everything including the muscles and joints.