Ehlers-Danlos Syndrome is not a crime, it’s genetic!
from the office the Chairman Eugene Wilson
November 27, 2013
Child abuse charges are a fear for all families who have Ehlers-Danlos Syndrome (EDS) and there is little protection for them. The accusations can come from a variety of sources including schools. Truancy Officers, members of the medical community and others whom fail to fully understand EDS. Families with this often misunderstood medical condition have enough to battle besides charges that can destroy the sanctity of a family.
EDS is as real as the air you breathe!
Have you ever been told you are double jointed? Can do unusual things with your joints? Maybe you have problems with your ankles rolling, or joints that often sublux or dislocate. Have you ever wondered why you are so tired, or at times forgetful? Has anyone ever said to you, “Where did you get those bruises?” Do your children have unexplained bruises? These are just a few signs of a real genetic medical condition that is called Ehlers Danlos Syndrome (EDS).